July is Disability Pride Month!

Jessi

Happy Disability Pride Month! It's held every year in July to recognize the passing of the Americans with Disabilities Act (ADA) on July 26th, 1990. 

The featured image is the disability pride flag and each color symbolizes a type of disability: 

The 2021 disability flag colors each represent a type of disability:

  • Green: sensory disabilities
  • Blue: emotional and psychiatric disabilities
  • White: non-visible and undiagnosed disabilities
  • Gold: neurodiversity
  • Red: physical disabilities

Below are five books that have disabled characters, or are written by people with disabilities. 

1.  A Face for Picasso: Coming of age with Crouzon Syndrome by Ariel Henley (Non-Fiction): There was danger in the kind of beauty I was desperate to achieve. At only eight months old, identical twin sisters Ariel and Zan Henley were diagnosed with Crouzon syndrome--a rare condition where the bones in the head fuse prematurely. They were the first twins known to survive it. Growing up, Ariel and her sister endured numerous medical procedures to keep them alive. Doctors expanded the twins' skulls and broke bones to make room for their growing organs. After each surgery, the sisters felt like strangers to each other, unable to recognize themselves in the mirror. Their case attracted international attention. A French fashion magazine said Ariel and Zan "resembled the works of Picasso," as if they were abstract paintings, not girls just trying to survive. Later, plastic surgeons cut and trimmed and tugged their faces toward a tenuous aesthetic ideal. The girls dreamed of appearing "beautiful" but would settle for "normal." Fighting for acceptance was a daily chore. Between besting middle school bullies, becoming a cheerleader in high school, and finding her literary voice in college, Ariel learned to navigate a beauty-obsessed world with a facial disfigurement to become the woman she is today.

2. Breathe and Count Back from Ten by Natalia Sylvester (Fiction): Verónica has had many surgeries to manage her disability. The best form of rehabilitation is swimming, so she spends hours in the pool, but not just to strengthen her body. Her Florida town is home to Mermaid Cove, a kitschy underwater attraction where professional mermaids perform in giant tanks . . . and Verónica wants to audition. But her conservative Peruvian parents would never go for it. And they definitely would never let her be with Alex, her cute new neighbor. She decides it’s time to seize control of her life, but her plans come crashing down when she learns her parents have been hiding the truth from her—the truth about her own body.

3. Disability Visibility : first-person stories from the twenty-first century edited by Alice Wong (Non-Fiction): One in five people in the United States lives with a disability. Some disabilities are visible, others less apparent—but all are underrepresented in media and popular culture. Activist Alice Wong brings together this urgent, galvanizing collection of contemporary essays by disabled people, just in time for the thirtieth anniversary of the Americans with Disabilities Act,
From Harriet McBryde Johnson’s account of her debate with Peter Singer over her own personhood to original pieces by authors like Keah Brown and Haben Girma; from blog posts, manifestos, and eulogies to Congressional testimonies, and beyond: this anthology gives a glimpse into the rich complexity of the disabled experience, highlighting the passions, talents, and everyday lives of this community. It invites readers to question their own understandings. It celebrates and documents disability culture in the now. It looks to the future and the past with hope and love.

4. Love from A to Z by S K Ali: A marvel: something you find amazing. Even ordinary-amazing. Like potatoes--because they make French fries happen. Like the perfect fries Adam and his mom used to make together. An oddity: whatever gives you pause. Like the fact that there are hateful people in the world. Like Zayneb's teacher, who won't stop reminding the class how "bad" Muslims are. But Zayneb, the only Muslim in class, isn't bad. She's angry. When she gets suspended for confronting her teacher, and he begins investigating her activist friends, Zayneb heads to her aunt's house in Doha, Qatar, for an early start to spring break. Fueled by the guilt of getting her friends in trouble, she resolves to try out a newer, "nicer" version of herself in a place where no one knows her. Then her path crosses with Adam's. Since he got diagnosed with multiple sclerosis in November, Adam's stopped going to classes, intent, instead, on perfecting the making of things. Intent on keeping the memory of his mom alive for his little sister. Adam's also intent on keeping his diagnosis a secret from his grieving father. Alone, Adam and Zayneb are playing roles for others, keeping their real thoughts locked away in their journals. Until a marvel and an oddity occurs... Marvel: Adam and Zayneb meeting. Oddity: Adam and Zayneb meeting.

5. Rolling warrior : the incredible, sometimes awkward, true story of a rebel girl on wheels who helped spark a revolution by Judith E Heumann (Non-Fiction): Judy Heumann was only 5 years old when she was first denied her right to attend school. Paralyzed from polio and raised by her Holocaust-surviving parents in New York City, Judy had a drive for equality that was instilled early in life. In this young readers’ edition of her acclaimed memoir, Being Heumann, Judy shares her journey of battling for equal access in an unequal world—from fighting to attend grade school after being described as a “fire hazard” because of her wheelchair, to suing the New York City school system for denying her a teacher’s license because of her disability. Judy went on to lead 150 disabled people in the longest sit-in protest in US history at the San Francisco Federal Building. Cut off from the outside world, the group slept on office floors, faced down bomb threats, and risked their lives to win the world’s attention and the first civil rights legislation for disabled people.

 

This blog post reflects the opinions of the author and does not necessarily represent the views of Brooklyn Public Library.

 

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